CENTRAL PAIN SYNDROME, A DEFINITION
A neuropathic pain with various names.....In an effort to get everyone on the same page the term we use is:
Central Pain Syndrome. We will often use CPS for short.
Synonyms: Also known as:
- Central Post-Stroke Syndrome
- Dejerine-Roussy Syndrome
- Central Neuropathy
- Posterior Thalamic Syndrome
- Retrolenticular Syndrome
- Thalamic Hyperesthetic Anesthesia
- Thalamic Pain Syndrome
Central Pain Syndrome is a neurological condition.
24/7 Sensations can affect us all differently, in different places on our bodies, and at different levels of pain and suffering.
Extremely difficult to diagnose:
Often sending the patient to many doctors to find one that believes in their suffering. Finding a doctor who is willing to treat and work to find relief for the person that suffers with this savage pain becomes a miracle in the mind of those that suffer.
Central pain syndrome occurs because of injury to central nervous system... CPS can be caused by stroke, multiple sclerosis, epilepsy, Parkinson’s disease, toxins, tumors and trauma to brain or spinal cord, any diseases that eventually reach the central nervous system.
It can be a steady, sometimes deep burning, aching, cutting, tearing, pressing, lacerating mixture of pain sensation.
Pain may be moderate to severe in intensity.
CPS may be described as:
As weird sensations like Burning: "A chemical, not a purely physical burn" , bone cold, wet sensations, tingling, a "pins and needles", a ballooning sensation, throbbing, the feeling of a dental probe on a raw nerve, even metallic.
Intense skin reactions:
- Can accompany these symptoms, such as burning, stretching, tightness, itching, or a crawling feeling.
- CPS can be aggravated by any light touch such as the feel of cloth on skin making dressing an ordeal, as can the touch of a sheet or blanket. The touch of a loved one, may overwhelm the brain with the pain from CPS.
Gut pain, stomach nausea and vomiting can be a part of CPS.
The hands, feet, head, and trunk can be affected with a numbness that is painful, and does not offer any relief, only adding to the pain.
CPS can begin from day one of the stroke/injury or can take months, even years to make it's appearance. Central Pain Syndrome can be a life threatening condition:
***NOTE****It can often cause depression, anxiety, anger, frustration and hopelessness. When a person rates the pain as a 9 or 10 on a pain scale, and there seems to be no relief in sight, with no hope or understanding or support from family and professionals, they may even come to feel that suicide is the only way out.
Triggers and Sensitivity reactions:
- Stress, anger, depression, emotions.
- Movement, daily activity, ROM exercising, tiredness.
- Exposure to sun, rain, cold, snow, breezes, AC, drafts, unseen sun flare activity, barometer changes.
- Environments of warmer and cooler from the particular person’s comfort zone.
- Added pain or swelling.
- Light touches of another person, blanket, clothes, splints.
- Sudden movements:
- Yawning and other reflexive involuntary movements such as sneezing, being startled, loud noises, bright lights and even vibrations as from riding in a car.
- Light sensitivity for the eyes,
- Noise sensitivity for the ears can be triggers for higher pain levels.
7 Types of pain sensations
Any or all of these pain types can overlap. A person could have one or all of these that can come and go as time passes.
1. Burning dysesthesia:
A mixture of pain sensations in which persistent light
touch is perceived as a thermal sensation. There are four overlapping subtypes.
"A chemical, not a purely physical burn"; "A mentholated burning"; burning it up with fire and acid".
"Like touching dry ice"; bone cold.
Wet and uncomfortable underneath the burning."
Motor or Kinesthetic Dysesthesia:
A feeling of cramping and contraction
associated with burning. "A terrible fatigue in my muscles, "A feeling of drawing, pulling, crushing."
Heightened response to a noxious stimulus.
Pain from a very mild stimulus. Can also describe referred pain.
Can relate to touch, location, temperature or muscle loading.
"Light touch from clothing becomes unbearable after a few minutes,
like an awful sunburn"; "Paper laid on the legs begins to burn unbearably after a minute or so."
Touching the face might show up as burning on the outside of the forearm. Sitting long enough for the skin to burn can become burning out to the side on the legs
Picking up a warm drink, it feels hot in the hand. Warm ambient
temperature sensitizes the skin so that all the other pain features appear more
Movement makes the body unbearably sore. The day after exercise, the body might have awful feelings of lactic acid buildup. Lying in bed can feel like sleeping on rocks.
4. Shooting or 5. Lacerating:
Sharp stabbing pains with an electrical quality.
A very common type in which circulation feels compromised. The feeling of pins and needles in parts of the body.
Feeling of fullness, burning, cramping, nausea or distention.